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The Ethics and Governance of Human Genetic Databases

The Ethics and Governance of Human Genetic Databases European Perspectives - Cambridge Law, Medicine and Ethics

Paperback (10 Oct 2013)

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Publisher's Synopsis

The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

About the Publisher

Cambridge University Press

Cambridge University Press dates from 1534 and is part of the University of Cambridge. We further the University's mission by disseminating knowledge in the pursuit of education, learning and research at the highest international levels of excellence.

Book information

ISBN: 9781107652576
Publisher: Cambridge University Press
Imprint: Cambridge University Press
Pub date:
DEWEY: 174.296042
DEWEY edition: 23
Language: English
Number of pages: 296
Weight: 400g
Height: 229mm
Width: 152mm
Spine width: 16mm