Publisher's Synopsis
The Autism Registry Report is a bold, comprehensive, and timely exploration of one of the most consequential tools in autism-related policy and research: the autism registry. But this book is about far more than data-it is about people, power, and the persistent fight for dignity.
With clarity and compassion, this report peels back the layers of what autism registries are-and what they are not-revealing the complex web of politics, ethics, and lived experiences entangled within them. Through meticulously researched chapters, first-person accounts, and ethical examinations, this book confronts the history of stigma, challenges harmful media narratives, and amplifies the voices of autistic individuals long pushed to the margins of public discourse.
From the rise of adult diagnoses and disparities in detection to the battles fought by caregivers navigating broken systems, The Autism Registry Report centers the real-life stories behind the statistics. It critically examines how public policy is shaped-not just by science, but by sensationalism-and calls for a more transparent, neurodiversity-affirming future.
This is not just a report-it's a rallying cry. For researchers. For policymakers. For autistic people. And for anyone committed to a world where autism is understood not as a problem to be solved, but as a reality to be respected.
Thoughtful, unflinching, and deeply human-The Autism Registry Report dares to reimagine the role of data in shaping a more inclusive society.
